All posts tagged: Jay Rattanavong

Manysavanh Phothisane: Why I walk for Thalassemia

Manysavanh “Loy” Phothisane and Jay Ratttanavong are two Lao Americans who can be found at many community events and causes in Minnesota, volunteering their time and energy. Many around them may not know that they’re also affected with a blood disorder called thalassemia, which requires frequent hospitalizations and blood transfusions. They’re hosting a Care Walk this Sunday, May 17th, 2015 to bring awareness of this health condition and to raise funds for more research. Below is a story shared by Manysavanh on living with thalassemia and why she’s walking.  Why I’m walking on May 17th, 2015: As some of you know –or may have observed—I frequently receive blood transfusions because my body cannot produce normal hemoglobin, the protein in red blood cells that carries oxygen. Before I could barely form sentences, I was diagnosed with a serious form of Thalassemia, requiring me to depend on other people’s blood to survive (thank you and many blessings if you’ve ever donated blood). I’ve never shared this with anyone before, but I used to live my life with …